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Lilly’s Journey – Synopsis

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Then after we went to North Carolina we went to Chincoteague Island. Here was very incredible because we got to see wild horses and we also went to a farm to ride tamed horses. This was all an amazing experience.

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I am running short of coal this year. So you can get snowman poop!!!


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Ha ha ha!!!!!!!!!! Happy Holidays Everyone!!! At the moment it is three days until Christmas Yay!!! A week into my hospital stay, in a last ditch effort to figure out what was happening, the doctors ran a capsule endoscopy and discovered bleeding ulcers in my small intestine.

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Sadly, my story is not uncommon. But instead of focusing on the pain and suffering endured, I would like to focus on the hope that exists for patients and that hope lies within research. Researchers and patients saved my life. Because of the research and the brave patients that took part in clinical trials, the biologic I take was approved by the FDA.

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Because of this revolutionary medication, I have been in remission for four years from my autoimmune diseases even after several years of failed treatments. My journey as a patient has defined my reason for being and I now have the remarkable opportunity to pay it forward and support the research and patients who changed my life. That is why I now serve as the Head of Patient Advocacy at Clara Health, a company working to connect patients to clinical trials and support them throughout the process.

Clinical trials are research studies that investigate how effective a medical treatment or device is for treating a condition. There are currently recruiting clinical trials for arthritis and , volunteers needed to fill these trials.

How My Fellow Patients Saved Me | Lilly's Journey

The trials range from observational studies that seek to understand the presence of rheumatic conditions in twins or siblings to interventional treatments studying biologics, ultrasound therapy, fitbits and working out with arthritis. The 8h9 therapy to the brain and spine has had fantastic results for Lilly. She truly is a very brave and lucky little girl. Now she can go to school and continue to be a normal little girl who absolutely loves life. We cannot begin to tell you how happy, proud and truly blessed we are to have this little lady in our lives!!!

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